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Messaging

The Hero’s Journey

Every hero embarks on a journey marked by challenges and uncertainties. For patients with congenital heart disease the journey through the healthcare system can often feel daunting and overwhelming. Just as every hero experiences moments of confusion and struggle, CHD patients often find themselves navigating complex medical landscapes and decisions.

At EmpowerMyCH, we recognize that patients are the true heroes of their health journeys. Our role is to act as the guide, providing support and clarity as they traverse their path. Unlike the traditional medical narrative where a patient’s heroism is symbolized by milestones such as ringing the cancer bell, we view every patient as a hero throughout their ongoing journey with CHD.

Our mission is to equip patients with the knowledge, tools, and confidence needed to participate in their care effectively. By framing the patient's experience within this heroic narrative, we ensure that our guidance is both empowering and supportive.

Our Why

To empower ACHD patients to proactively participate in their health journey and thrive.

Our Mission

To bridge gaps in care and elevate the quality of life and health outcomes for adults with congenital heart disease through knowledge and resources.

Our Vision

We envision a future where every ACHD patient feels valued throughout the process, confidently participates in their health journey, and receives the comprehensive care they need.

Using The Story Narrative

Using a story narrative in creating patient interventions involves framing patients as heroes on their health journey, with the healthcare system presenting challenges along the way. The interventions position EmpowerMyCH as the trusted guide, providing the tools, support, and knowledge needed for patients to confidently navigate their care. This narrative approach not only engages patients by making them active participants in their story but also enhances their sense of empowerment and control over their health decisions.

1. What Does the Patient Want?

  • Empowerment: Patients want to feel empowered in their health journey.
  • Confidence: They seek confidence in managing their congenital heart disease and navigating the healthcare system.
  • Knowledge: They desire knowledge, enabling them to make informed decisions and engage in shared decision-making with their care team.

2. The Problem:

  • External Problem (Managing CHD): The challenge of managing CHD and the associated healthcare needs.
  • Internal Problem (Navigating the Healthcare System): The difficulties patients face in understanding, accessing, and utilizing the healthcare system effectively.
  • Philosophical Problem (Deserving Proper Care): Patients believe they deserve to be valued, to receive proper care, and to be treated as partners in their health journey.

3. The Villain:

  • Healthcare System: The primary antagonist, representing the complexities, barriers, and inefficiencies that make it difficult for patients to manage their CHD effectively.
  • Specific Villains: This could include miscommunication, lack of specialized care, or inaccessible resources.

4. The Guide (EmpowerMyCH):

  • Authority: EmpowerMyCH is developed by ACHD providers, researchers, and patients who understand the challenges firsthand.
  • Empathy: The platform is built by those who have lived the CHD experience, demonstrating an understanding of the patient's journey.

5. The Transformation:

  • Empowerment: Patients transform from feeling overwhelmed by their healthcare challenges to being empowered to participate in their health.
  • Confidence: They gain confidence in navigating their care, from preparing for appointments to managing ongoing health needs.
  • Partnership: Patients move from passive recipients of care to active partners in their healthcare decisions.

6. The Hero (The Patient):

  • Role: The patient is the hero, participating actively in their health journey and choosing how much they wish to lead their care.
  • Goal: Navigating their health with confidence and knowledge, overcoming challenges within the healthcare system.

7. The Process (The Product):

  • EmpowerMyCH App: A mobile and web app designed to guide patients through their healthcare journey.
  • Features: Tools for managing specialist visits, understanding care options, and connecting with peers and experts.

8. Call to Action:

  • Direct: Download the app and start your journey with EmpowerMyCH, where you will find the support and tools to participate confidently in your health journey.
  • Transitional:

Example Application: Intervention Titles

Before:

I have a cardiologist visit upcoming. But... How can I best prepare for it?

After:

A Peer-Powered Guide to Confidently Navigating Your Cardiologist Appointments

Transformation Focus: Shifting from uncertainty to empowerment, with a focus on equipping patients with confidence and tools for managing their healthcare journey.

Summary:
By positioning patients as heroes who are gaining empowerment and confidence in their healthcare journey, and framing EmpowerMyCH as the guide that supports them, this approach creates a compelling and motivating narrative. This strategy moves away from a didactic tone and instead fosters engagement by emphasizing the transformative experience of managing their health with greater self-assurance.

Patient Pitch

At EmpowerMyCH, you become an active partner in your health journey. Our team of ACHD providers and researchers understands the challenges of managing congenital heart disease. With our mobile and web app, you can confidently navigate your care. With valuable input from patients like you at every step, EmpowerMyCH guides you to stay on top of specialist visits and confidently manage your health. We aim to empower you with the tools and connections to overcome obstacles and actively participate in your health. Download the app and transform your approach to managing your health with a tool made for you!

Provider Pitch